Sunday, February 24, 2008

How is [your child] doing?

I haven't posted here for awhile! Mainly because there haven't been very many general questions to answer for anyone lately! But I did want to include a question (of mine) to another JA mom. I had asked if she had put further thought into starting a blog, and added the following question as well: "How is [your child] doing?" And my friend Wendy answered with words that I thought were very profound. I agreed totally with them, and wanted to share them here. My friend Wendy gave me permission to do so:

"[My child] has been doing so fantastic that the idea of a blog is far from my mind. It's funny, when things are going well, it's easy to forget she even has this disease. And when things aren't, it's impossible to think about anything else."

How very true that is!!! I've been there--both places! We are grateful that for Anna and for us as her parents--especially lately---that things have been going relatively well, so unless it's time to administer the medications, it's easy to forget that she even has this disease. How I wish that all JA parents and patients could be in that place.


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Anonymous said...

looking for imformation about children living with JA and how this affects their daily life.

Tammy said...

Dear Anonymous, I hope you have searched out the links on this blog and on Anna's JRA blog. I have some links to blogs of parents of other kids with arthritis. There are all type of juvenile arthritis and the prognosis of each child can vary widely. Anna has a mild form of arthritis and a mild form of uveitis, and life is practically normal for us (except for medication, blood tests, and doctors' appointments). But I know other kids and parents face challenges. You will find all types of stories on the Internet, in blogs, on Facebook, etc.

Lucy Miller said...


I came across this blog as I was searching for information on juvenile arthritis. I have a dear friend with arthritis and they have received support and guidance from their local chapter of the Arthritis Foundation.

Currently, the Foundation is promoting a contest where you can win a Nintendo Wii game system – all you have to do is enter a photo of your arthritis hero. The Wii system encourages movement which is one of the best medicines for fighting arthritis. Just wanted to pass along the word.

Good luck.

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Hey, there is one new site about how to heal arthritis with no drugs.

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